Tuesday, October 29, 2013

skinny jeans and pull ups.*

Let's take a minute to talk about my job.

About how it is probably the lowest paying, most energy sucking, painful, frustrating, joyful, rewarding, edifying, inspiring job I will ever have.

I work in a PECS classroom (Picture Exchange Communication System). Most of our students fall on the Autism spectrum or have a speech, language, or educational delay. We also have a small number of "typical" peers who are in place to demonstrate developmentally appropriate behavior. We operate my using visuals or pictures, representing everything in our classroom. Each child has the own "visual schedule" that gives them the run down of the day in pictures. (This is because many children with autism respond better to visual cues than auditory.)

Most of our students have much deeper needs than the all encompassing "diagnosis" or "label" that they enter our classroom with. It is tough. Our kiddos are tough. Even on some of their best days, we can find ourselves struggling to meet them where they are. Each one is an amazing little mystery. One minute, I think I am going to hit my breaking point, grab my bag and just walk right out the door. The next minute, I am a puddle in the floor getting an affectionate hug from a kid as I comfort them. While I am soaking up that hug, one sneaks up behind me and bites my skull. (Yup, right through the hair.) Then I am near tears when one makes eye contact with me and speaks a coherent thought for the first time in weeks.

And that is just a two-minute span.

I have noticed that so many people know SO little about autism. And that is the purpose of this blog post. Autism is an epidemic. We can sit here and argue about immunizations, overdiagnosis, genetic predisposition, environmental factors, and hundreds of other possible causes. But the fact is, with stats ringing in that 1 in every 88 children will be on the spectrum, it is very likely that you will be in contact with a child (or adult) with autism. 

Take a moment to visit autismspeaks.org. It is an amazing resource to explain this disorder and give you  tools for interaction. And I am ALWAYS excited when people ask me questions, so please do! If I can't answer them, I love to track down the answer. You can never learn too much about the people around you.

Here are some facts to start you off:

  • Autism is the fastest-growing serious developmental disability in the U.S.
  • Autism costs a family $60,000 a year on average
  • Boys are nearly five times more likely than girls to have autism
  • There is no medical detection or cure for autism
  • However, Autism can be detected as early as 6 months.
Enjoy!



*The title of this post comes from the recent strife we have endured as one of our parents has tried to mix the world of fashion with a lack of potty training. Two words: sensory issues.

Thursday, October 10, 2013

the struggle and the beauty.

leave it to me to let an overemotional episode of glee spur me into posting on my long-forgotten blog. 


but seriously. was saying goodbye to finn not just the most heart wrenching thing? oh, and every cast member's genuine emotion just sent me over the edge. especially, you, lea michelle. and matthew morrison. and naya rivera. but i digress.

our little life has been so beautiful lately, i can't believe i am not chronicling it. and maybe i should clarify. it isn't the everything-is-going well, rainbows, butterflies, and rays of sunshine beautiful. it is much more beautiful than that. it is a beauty found in the darkness. found only in the craters of our hearts. only in the spaces no one wants to go.

our family has been through some turmoil as of late. "some turmoil", to say the least. on top of many other things, i have been mourning (what i thought was) reality as i enter a new step in adulthood that i was not expecting. moving 2 miles away from my parents has been much harder than moving to alabama or to montana. i always called this little white house with columns and a green door "home". now i call it "my parents' house". i realize most people my age have gone through this, but that doesn't make it easier or less confusing. i take a step back from my mind and am astonished at what this season of life has dealt me. life was supposed to be easier once we moved to tennessee, right? things make sense here; this is home, right?


nope.


however, this flashed across my screen a few weeks ago:



oh, how it turned my heart a million different directions. i have heard the theme of this story from so many in my life, and i am beginning to write my story with this lens. a lens of beauty, of abounding grace, of unfathomable mercy. of all those churchy words that you don't really understand what they mean until you feel them. i pray every one of you (all, what, 2 of you?) reading this will find that lens in times of pain and sorrow.

God is so good, He's so good to me.